Interview on Genetic Testing and Autonomy

This week, I decided to explore the ethical complexities of mandatory genetic testing for expectant parents for a bioethics course. To deepen my understanding, I conducted an interview with Dr. Kim, a doctor with over fifteen years of experience in prenatal care and bioethics.

Interview Summary:

Dr. Kim emphasized that while genetic testing can be incredibly valuable for early detection of hereditary conditions, making it mandatory raises serious ethical concerns, especially regarding respect for patient autonomy.

he explained that autonomy is a foundational bioethical principle, and that requiring genetic testing removes the ability for individuals and families to make personal, informed choices based on their unique values and circumstances. Dr. Kim also discussed the principle of non-maleficence, noting that mandatory testing could cause significant anxiety or distress, particularly if parents feel pressured to act on the results in ways that conflict with their beliefs.

While acknowledging that justice is important, Dr. Kim argued that justice should be about offering equal opportunities rather than enforcing uniform actions. Ultimately, she advocated for a patient-centered approach where genetic testing is available and accessible, but always voluntary and based on fully informed consent.

Reflection

This conversation with Dr. Kim clarified for me how easily the four principles of bioethics can come into tension. I found her emphasis on autonomy particularly compelling: real ethical practice in medicine is not just about advancing science or preventing harm, but about trusting people to decide what is best for themselves and their families. This interview reminded me that, in bioethics, there are rarely easy answers, but there are always thoughtful questions worth asking.